I really wanted to share that my husband and I are 2 out of 100 chosen out of 20,000 entries that are going to be a part of the Susan G. Komen halftime show at this weekends Dallas Cowboys football game. Chris and I will be representing for all the Breast Cancer people from across all the states. We are being picked up on the Cowboys bus, get to watch the game from the Miller Lite Suite at the new stadium and will be walking on the field during the halftime show!
We could not be more excited about this especially at the new stadium. It is expensive these days with the new stadium and all so it will be nice to get our first trip to the new billion dollar stadium to be such a great memory but I will get pictures for sure!
Also Amb. Nancy Brinker will be in the building doing the coin toss at the game so she will actually be in the building. For those who don't know who she is, she is the founder of Susan G. Komen foundation itself. Its an honor to be in the halftime show she is putting on with Jerry Jones in honor of kicking off the first Sunday of Breast Cancer Awareness Month.
When we found out we were chosen it was a blessing all in itself. I cant wait, I know I keep saying that but I really mean it. I want to represent for all the women who fight everyday and don't get credit for what they go through. I am here to give you credit and say to you, Keep Fighting, Keep Shining, and do not give up no matter what. It is a new day everyday and don't be afraid to get up and try again because of it. I know every women out there has the strength in them to do it. Yes you have hard days, yes you cry, yes you have to get mad and get it all out so that you can move on and get things done.
I am st the beginning of my radiation for my spine and my left leg. I thought it was my shoulder but no, its my spine. They will be doing my shoulder later. So I say that I am going to get it done, and zap this crap right out of my body!
Anyway, besides it making me tired, I am really responding well to this radiation. I am not scarring, or scabbing, or burning on my skin yet so I have my fingers cross that I wont have to go through that again.
Peace and love,
Renee B.
I have St 4 Breast cancer and I am kicking its ass. I am going to win my fight and those of you who want to know a living miracle might stay tuned...
About Renee and my blog!
- Renee Bravo
- Dallas, TEXAS, United States
- I was diagnosed with Stage 4 Metastatic Breast Cancer at the age of 29 years old. I am a work in progress. I am learning, growing, and trying to raise awareness for Early Detection. I believe in Girl Power and the power of Prayer. I am a mother, a wife, a strong woman in the 30th century. I have zero history in my family, and I have tested negative for the BRCA gene. I should not be facing this right now, but I am. I figure its for a reason. I decided to share my experiences more for awareness but also a place for my family to get updates. I do not send out email updates to anyone, I post it here. Here I am, I hold nothing back. If I ask anything, its to learn something from what I have been through, and make your life better because of it, treat someone better because of it, love someone more genuinely because of it. And most important of all, make sure all the women in your life have regular mammograms or MRI's. No choice. I believe 40 is too long to wait. Women today need to start early. I would love to hear or talk to any of you. God Bless.
Thursday, October 7, 2010
Sunday, October 3, 2010
The xrays I had last week of September came back with a fracture in my shoulder. I knew it was hurting but wasn't sure it had gotten to that point of a fracture. The cancer in my bones is responsible for that and I know that I will have more pain before I get relief.
I found this out when I was at my consultation for my radiation so the only good thing that came out of this is I will be able to do my shoulder radiation at the same time as my leg radiation. Its 10 treatments as well. I am at very happy that I wont have to wait for my leg radiation to be done before I started on my shoulder.
So I have had first appointment and I get my schedule and my first treatment on my next visit. I already know what to expect pretty much so this should blow by and be a breeze. My chest radiation was 39 treatments so 10 doesn't feel so long or wont burn me as bad as this time. I guess we shall see...
I found this out when I was at my consultation for my radiation so the only good thing that came out of this is I will be able to do my shoulder radiation at the same time as my leg radiation. Its 10 treatments as well. I am at very happy that I wont have to wait for my leg radiation to be done before I started on my shoulder.
So I have had first appointment and I get my schedule and my first treatment on my next visit. I already know what to expect pretty much so this should blow by and be a breeze. My chest radiation was 39 treatments so 10 doesn't feel so long or wont burn me as bad as this time. I guess we shall see...
Thursday, September 30, 2010
Why I Always Believe
I have had the roughest past few months than I have had in a long time. Its been a long time since I can remember myself questioning my place and if I am going in the right direction and if the blog was helping anyone and if I should continue to write and if it was doing any good in this world.
It was only a few days until I got an email on my facebook from the National Breast Cancer Foundation asking if I wanted to be a part of a project they have coming up. I am in the middle of details and meeting. Needless to say that just the simple sign from above that I am doing what I need to be doing. Lead and I shall follow are my prayers tonight!!
Renee B
It was only a few days until I got an email on my facebook from the National Breast Cancer Foundation asking if I wanted to be a part of a project they have coming up. I am in the middle of details and meeting. Needless to say that just the simple sign from above that I am doing what I need to be doing. Lead and I shall follow are my prayers tonight!!
Renee B
Friday, September 24, 2010
I had a day full of appointments today. I went for one scheduled appointment originally knowing that there were other things I needed to take care of. I knew that if they could be so kind to fit me while I was there that I would stay. I needed my chemo and also needed to see my nutritionist, the social worker, and the counselor who ended up popping in at the end.
I was pleased to go today which is an unusual thing for me most of the time. I have been forced to hear bad news at each and every doctor visit. For the first years I struggled to get over that part of it. There are 2 sides to every story and there is another side to looking at going to these doctor visits. I finally realized that although the doctors have to deliver the bad news, it is something that has to be done so that you can get to the healing part. I also realized that these teams of doctors are also trying to save me so I need to go and no matter what I hear. I now decide to turn the nervous energy into a positive place. It is something that you have to do if you want to move forward with your treatments.
I am lucky that I absolutely love my team of doctors., I haven't always been able to say that. I am lucky that I can say that now. I had an instinct that would tell me if this was the doctor for me or not. There are some who talk to you as if you are already dead and others that don't talk to you at all, just tell you what to take. I am the type of girl that need information. I think knowledge is power and if you are going through anything like this, the more information you know the better of you are and the better off your treatment plan is or can be. I know that my fellow women out there and are smart enough to know when and where you can find the answers to the questions you are looking for. Email me, we will try and find it together...so anyway I did take myself to the doctor, drove, parked crazy far because there was no
parking in handicap. I walked all the way in there and to be honest I times my meds just right to be working perfectly while I was having to walk and talk to everyone. I was so pleased to see everyone especially the main doctor I was there to see. She truly is one of my angels and I do love going to see her. Maybe that is another reason I was able to turn my thinking around when it comes to going to my appointments. Anyway, I stayed to take care of everything I needed to which included xrays on my shoulder and neck. I can say now that it takes alot out of me when I give my all like that. I have to learn how to proportion myself out or something..lol... But no, my leg hurt the next days, maybe from the walking, and I was sore no doubt. I was so excited at the time that I ignore all and go for the goal, get the job done. That is how it has to be. Well I think I posted early so sorry if it sent you multiple messages to my followers. Prayers to all!
Renee Bravo
I was pleased to go today which is an unusual thing for me most of the time. I have been forced to hear bad news at each and every doctor visit. For the first years I struggled to get over that part of it. There are 2 sides to every story and there is another side to looking at going to these doctor visits. I finally realized that although the doctors have to deliver the bad news, it is something that has to be done so that you can get to the healing part. I also realized that these teams of doctors are also trying to save me so I need to go and no matter what I hear. I now decide to turn the nervous energy into a positive place. It is something that you have to do if you want to move forward with your treatments.
I am lucky that I absolutely love my team of doctors., I haven't always been able to say that. I am lucky that I can say that now. I had an instinct that would tell me if this was the doctor for me or not. There are some who talk to you as if you are already dead and others that don't talk to you at all, just tell you what to take. I am the type of girl that need information. I think knowledge is power and if you are going through anything like this, the more information you know the better of you are and the better off your treatment plan is or can be. I know that my fellow women out there and are smart enough to know when and where you can find the answers to the questions you are looking for. Email me, we will try and find it together...so anyway I did take myself to the doctor, drove, parked crazy far because there was no
parking in handicap. I walked all the way in there and to be honest I times my meds just right to be working perfectly while I was having to walk and talk to everyone. I was so pleased to see everyone especially the main doctor I was there to see. She truly is one of my angels and I do love going to see her. Maybe that is another reason I was able to turn my thinking around when it comes to going to my appointments. Anyway, I stayed to take care of everything I needed to which included xrays on my shoulder and neck. I can say now that it takes alot out of me when I give my all like that. I have to learn how to proportion myself out or something..lol... But no, my leg hurt the next days, maybe from the walking, and I was sore no doubt. I was so excited at the time that I ignore all and go for the goal, get the job done. That is how it has to be. Well I think I posted early so sorry if it sent you multiple messages to my followers. Prayers to all!
Renee Bravo
Friday, September 10, 2010
Its Friday today. I have tried to do nothing but relax today. Yesterday was very traumatizing. The last thing in the day that happened was we had tornado touch down not blocks from the house. I was outside just a few minutes before and saw the hook cloud. It is the beginnings of a tornado for people who live outside of Texas. This same hook cloud was what formed the tornado that ended up tearing off roofs of buildings. These were big concrete warehouse buildings and big semi trucks that just got picked up like it was nothing. No one was killed thank the Good Lord. It rained so much. It was remnants of the tropical storm that came through. Glad its over with and its Friday today needless to say. I spent the day at home with my dogs.
As for my medical issues lately, I figured out today that one of my incisions had a small infection so I know why I have had extra pain since my surgery. Instant relief came after getting it all cleaned up and its already healing nicely. It ended up being a piece of a stitch that was as small as a millimeter. I got it out though. I have had pains in my chest here and there. I wont know anything about that until I get another scan. I am able to go in spurts when it comes to walking or doing anything that requires energy or effort. I still do it. There is nothing that is going to keep me down. I will always get back up. I will always try again. I will never stop. I will not back down for any reason, for anyone, ever. I end up healing and I am reminded that yes my body still works when even a tiny piece of stitch is able to push itself out of my body. Its great for me to be reminded of that. Believe it or not, its something that crosses my mind from time to time. I am forced to pay attention to every little thing that happens with my body because its a habit now. I actually cant stand it sometimes. It causes me to worry at times when I don't need to or shouldn't be.
This type of thing can drive you crazy if you let it. Every pain, every burning or tingling I have, headaches I get, it could be just about anything. I do know the different pains though. The cancer pain, the bone cancer pain, the nerve pain, and the aching are all different kinds of pain. They all stack up on top of each other and a lot of times that is what I take and endure all the while smiling for everyone so THEY wont be uncomfortable. I think I am making it easier for others, but all that does is make them think that I am just cruising through life with no worries. It ends up working against me in the long run because all people do is gossip. I even had one aunt accuse me of "faking" it. Can you believe that? Well I couldn't make this stuff up. So its just one more person that smiles to my face and talks about me behind my back. You see I have a huge family and I would say that most of them are too busy with their own lives to even bother with me. I have my husband and my 2 kids and my grandmother who really give me support. My aunt Judy and my Uncle Crae are very important to me as well. When I say support it doesn't mean coming to bow down and worship me. I am thankful for just a simple phone call or email just saying hi, and I'm thinking of you. I can testify that when you think that your family doesn't care or you are hurt by the rudeness of family, even moms, dads, brothers or sisters, anyone in your life who abandons you after your diagnosis, the Lord will send you people to replace those others. You will get new friends, new doctors, nurses, fellow patients, counselors, and the list goes on....the ugly will be replaced with joy and love from places you never expected and at times when your not even looking for it or paying attention. Don't give up is the important thing. Never give up. Say every single day "I am not going anywhere", and your body will respond. Faith is a great tool at this time.
That doesn't even scratch the surface of all the things that I go through on a daily basis. I am gathering up the courage to type the latest report that I got from my body scan. They listed all the places that this cancer lurks inside me. Very hard to hear. I can tell you that I could have written that report myself because I feel it inside me. Its trippy to actually see it on the scan, and heart wrenching to hear it confirmed. I let myself cry about it and then I move on. I challenge anyone to hear that type of thing and not cry about it. It will never make me give up, or back down. This cancer picked the wrong person to mess with!
I'm kicking ass people. Join me won't you! Love and peace to everyone. Sending angels and prayers, send them back!
Renee Bravo
As for my medical issues lately, I figured out today that one of my incisions had a small infection so I know why I have had extra pain since my surgery. Instant relief came after getting it all cleaned up and its already healing nicely. It ended up being a piece of a stitch that was as small as a millimeter. I got it out though. I have had pains in my chest here and there. I wont know anything about that until I get another scan. I am able to go in spurts when it comes to walking or doing anything that requires energy or effort. I still do it. There is nothing that is going to keep me down. I will always get back up. I will always try again. I will never stop. I will not back down for any reason, for anyone, ever. I end up healing and I am reminded that yes my body still works when even a tiny piece of stitch is able to push itself out of my body. Its great for me to be reminded of that. Believe it or not, its something that crosses my mind from time to time. I am forced to pay attention to every little thing that happens with my body because its a habit now. I actually cant stand it sometimes. It causes me to worry at times when I don't need to or shouldn't be.
This type of thing can drive you crazy if you let it. Every pain, every burning or tingling I have, headaches I get, it could be just about anything. I do know the different pains though. The cancer pain, the bone cancer pain, the nerve pain, and the aching are all different kinds of pain. They all stack up on top of each other and a lot of times that is what I take and endure all the while smiling for everyone so THEY wont be uncomfortable. I think I am making it easier for others, but all that does is make them think that I am just cruising through life with no worries. It ends up working against me in the long run because all people do is gossip. I even had one aunt accuse me of "faking" it. Can you believe that? Well I couldn't make this stuff up. So its just one more person that smiles to my face and talks about me behind my back. You see I have a huge family and I would say that most of them are too busy with their own lives to even bother with me. I have my husband and my 2 kids and my grandmother who really give me support. My aunt Judy and my Uncle Crae are very important to me as well. When I say support it doesn't mean coming to bow down and worship me. I am thankful for just a simple phone call or email just saying hi, and I'm thinking of you. I can testify that when you think that your family doesn't care or you are hurt by the rudeness of family, even moms, dads, brothers or sisters, anyone in your life who abandons you after your diagnosis, the Lord will send you people to replace those others. You will get new friends, new doctors, nurses, fellow patients, counselors, and the list goes on....the ugly will be replaced with joy and love from places you never expected and at times when your not even looking for it or paying attention. Don't give up is the important thing. Never give up. Say every single day "I am not going anywhere", and your body will respond. Faith is a great tool at this time.
That doesn't even scratch the surface of all the things that I go through on a daily basis. I am gathering up the courage to type the latest report that I got from my body scan. They listed all the places that this cancer lurks inside me. Very hard to hear. I can tell you that I could have written that report myself because I feel it inside me. Its trippy to actually see it on the scan, and heart wrenching to hear it confirmed. I let myself cry about it and then I move on. I challenge anyone to hear that type of thing and not cry about it. It will never make me give up, or back down. This cancer picked the wrong person to mess with!
I'm kicking ass people. Join me won't you! Love and peace to everyone. Sending angels and prayers, send them back!
Renee Bravo
I haven't written anything in a few weeks. So much has been going on that I have been trying to work out. Its been a confusing time in my life. I have been very aware that there is big changes going on in my life and I am just adjusting to everything the best way I can. I keep my strength and I keep my prayers with me at all times. No one can penetrate my zone when it comes to that. I have a fierce aura and I block all negative energy and send it back. I am becoming wiser. I plan to share with you the lessons I am learning and have been through. Its the best way to get it out there so no one has to be hurt or confused just so they can be happy again. I just want to be happy. Seems like too much to ask at times, but you know what... if anything I will make sure of its that. I will be happy everyday, no matter what! Join me wont you!
Love to all,
Renee B.
Love to all,
Renee B.
Sunday, August 8, 2010
Thursday, July 22, 2010
Update on left leg
Things with my leg have been much different than with my right leg. The reason being that my left leg included my hip that had issues too. My right leg did not have that. So I am healing a leg that has issues in the hip and its much more painful and is taking longer to heal. No matter what I always keep a positive attitude and I say that I am doing well. The Lord let me wake up another day and I can not complain about it. Most people I know already have made their peace with losing me. When I hear that I just shake my head because I am not going anywhere. It seems like people give up on you before you give up on you. What does that tell me? Like I said, I know who loves me, I know who is my friend, and I need and want prayers from all of those who are willing to send me positive vibes and prayers that will help me heal and help me get up and be on my feet for longer than 5 minutes at a time. I was unable to even stand at all so being able to stay on my feel for longer than 5 minutes is a great thing for me. Its an accomplishment all the same. I am a cheer leading team of 1 and I root for myself with all the greatness of the world on my shoulders. I have love that overpowers the haters. I have way more friends, and peaceful people who send me love and I know it cancels out all the haters who dont care about me one bit. I never said I needed everyone to support me. If someone feels that way I didnt need them anyway, plain and simple. I have cut all drama from my life. Love is all I need!
Renee B.
Lover not a Fighter!
Renee B.
Lover not a Fighter!
Thursday, July 15, 2010
Nerve Pinch
One of the things they did to me while I was in the hospital was a nerve block. They tried to do a spinal block which caused them to push on my spine to make sure which bone was which. It was all good until they got to my lower spine and they pushed so hard on the part where my tumors are that I went into my surgery crying. They were not able to do it through my spine after all that, they ended up doing a groin nerve pinch which just meant that it was on my upper thigh on the inside. They ended up being successful with that, but it ended up meaning that I did not regain full control of my leg until about 2 days. I couldnt feel anything, I guess that was a good thing. So since I went into my surgery crying, I woke up crying as well. It was a tough experience to go through, and I am just not able to speak about it. I could not believe how hard they pressed on my back, it made my leg tingle which was weird. So that is one part I can share with you right now. I try not to remember the difficult times, but if I dont share them everyone thinks that what I go through isnt hard or difficult just because I dont complain. I take everything in stride and I deal with it if I have to. I dont think anyone appreciates the simplicity of that but I do. I have faith and I will never complain about what I am dealing with. Its life, I deal with it day by day just like everyone else.
Judgemental
I have been through a lot this year. Many people have shown their true colors in my life when I dont do anything to anyone but try to live another day. For some reason family is a subject in my life I never thought I would have a problem with. Maybe by me not thinking I had anything to worry about something went wrong. All I know is if I told you that I had family members texting me ugly messages while I was in the hospital for 5 days would you bellieve it. I did. Close family members too. It was not ok and I do not appreciate how judgemental everyone seems to be all the sudden. I have always said that I am here for anyone, anytime but since my diagnosis, no one really talks to me about their problems or issues. I guess they dont want to add anything to what I am already going through. I keep in contact with my real friends and people that know and love me or me and I am fine with that. I dont judge anyone, and I dont spread gossip although that is what every hater tries to do to me. For some reason I have a problem in my life when it comes to some people. I have always said that if you dont want me in your life that its fine with me, I have really seen that jumping to conclusions and being judgemental about someone is definately the wrong thing to do. Maybe remembering that everyone is going through something and maybe smiling at others instead of being scared to talk to people maybe would make this world a little better place.
Tuesday, July 13, 2010
Hottness
It has been so hott that I really havent been anywhere or attempted to go do any walking. I talked about talking my girl to Six Flags or something fun before summer runs out but I feel like its been way to hot. Chris and I have other things in mind, air conditioned things like the Planeterium, or the Imax should be fun to do. Chris has worried about me walking around too much which is something I dont think about when planning fun. I dont think about limitations when having fun, who does? Well I will let you know what happens..
Monday, July 12, 2010
Doing Better
My leg is doing better. I know that from before when I could only take a couple of steps at a time. I decided to use crutches this time after my surgery instead of a walker. This time it was different even though they did the same surgery, they went about it differently than they did with my other leg. They cut in a different place, they used a nerve pinch this time on my leg and they didn't do that last time. The thing that is left to hurt now is the hardware that they installed in my leg which is actually bolted to my knee and my hip. It is fusing as we speak. It hurts. I also have jerking that happens sometimes and if I am sitting wrong it jerks sideways kinda and it hurts too. I don't know how else to go about getting better except to do it slowly and carefully. I haven't been getting up much but when I do I try slowly to put full weight on my leg. Slowly but surely. The right leg I was able to put full weight on my leg in a couple days. This time its taking a couple weeks. The break was in a different place and everything so I know its not going to be the same. I am going in for my radiation planning meeting very soon. I am told I am going to have about 10 treatments. Same as I had on my right leg. I know what to expect this time. I am keeping the faith that the pain will cease to exist when all that is over with. I had my eyes on finishing the surgery so much that I forgot completely about radiation. Guess I know that I need to get it over with and I will be happy to that is for sure!
Wednesday, July 7, 2010
Home From Hospital
Hello to all! I am officially home from the hospital and able to sit up just enough to write something down for you real quick. I ended up having a rod installed in my left leg just like my right one. They went about it in different ways which was sorta strange to me. I did my best in there and its such a long story that I am sure I will have to get to it in parts. I did end up going in through emergency after I went to my regular appointment. They didn't want me to leave because they feared I may injure my leg even further before they could fix it. I ended up staying for days and days.
So much happened over the weekend. I have had a real wake up call in a lot of ways and I'm not sure how it happened or why. I'm not going to take too many things at a time which I feel some around me are trying to force me to do.
The thing is I know how hard it is to take care of me. I take care of me every day. I am a fighter and I have enough left in me to know what I want and what I don't want, and how I am going to be treated and how I am not going to be treated. I just think life is way to short for bull and I definitely know that I don't have any time to waste with drama. I am starting to realize everyday more about myself and the people around me. Remember guys, it doesn't only take family around you as a care and support system. My husband has been the biggest rock there is, but outside of home I am really going to start trying to be support for others as I look for support as well. I am going to have fresh conversation about things from fresh eyes even if it is a message board or posting on someones page. I have been invited to be a part of several medical pages and I am going to start being a part of that. I know it will help others and that is my main goal, with a second goal of conversing with someone who TRULY knows what I am going through because they are going through it too. Well I'm tired and I'm going to rest. I have a treatment in the morning and oyeah, I will be having a consult for radiation early next week. So all in all if I can get the pain under control with all those other things in mind I think its a good start.
Peace and Love,
RENEE B <3
So much happened over the weekend. I have had a real wake up call in a lot of ways and I'm not sure how it happened or why. I'm not going to take too many things at a time which I feel some around me are trying to force me to do.
The thing is I know how hard it is to take care of me. I take care of me every day. I am a fighter and I have enough left in me to know what I want and what I don't want, and how I am going to be treated and how I am not going to be treated. I just think life is way to short for bull and I definitely know that I don't have any time to waste with drama. I am starting to realize everyday more about myself and the people around me. Remember guys, it doesn't only take family around you as a care and support system. My husband has been the biggest rock there is, but outside of home I am really going to start trying to be support for others as I look for support as well. I am going to have fresh conversation about things from fresh eyes even if it is a message board or posting on someones page. I have been invited to be a part of several medical pages and I am going to start being a part of that. I know it will help others and that is my main goal, with a second goal of conversing with someone who TRULY knows what I am going through because they are going through it too. Well I'm tired and I'm going to rest. I have a treatment in the morning and oyeah, I will be having a consult for radiation early next week. So all in all if I can get the pain under control with all those other things in mind I think its a good start.
Peace and Love,
RENEE B <3
Saturday, June 26, 2010
Time's A Wastin
I know that I am doing all I can. I have been comforted by every single doctor I have that there is nothing more I could be doing for myself than what I am already doing. I feel like I am just wasting time though.
I have my dreams on hold to take care of myself 100% with no other focus. I am really at the end of waiting for things to happens. I don't like my fate in other peoples hands. I am in charge of what happens to me and I am more than excited that maybe when they fix my other leg I will be able to be on my feet again. I can go do the things I want to do without worrying about if my pain will be an issue. I also don't like to interrupt others day with having to wait for me. I know that it isn't an issue for anybody that I have around me. They would do anything for me. I know that. I just want to do as much for myself as I can.
We have been getting the house ready for when I come home. I wont have any obstacles. Whether I have to have a walker or crutches for a while, I will need the space to use these items to get me around. I wont pull a wheelchair out unless there is a bunch of walking that day. Like the zoo, or the other day Chris wheeled me around for my xray. It was on the bottom floor and my doctor appointment is on another floor so there would be a lot of walking.
All I know is I am ready to know what they are going to do, how it will effect me, and when I will be able to be 100 miles and runnin again. Oh because you better believe that I will.
Love to all,
Renee B.
I have my dreams on hold to take care of myself 100% with no other focus. I am really at the end of waiting for things to happens. I don't like my fate in other peoples hands. I am in charge of what happens to me and I am more than excited that maybe when they fix my other leg I will be able to be on my feet again. I can go do the things I want to do without worrying about if my pain will be an issue. I also don't like to interrupt others day with having to wait for me. I know that it isn't an issue for anybody that I have around me. They would do anything for me. I know that. I just want to do as much for myself as I can.
We have been getting the house ready for when I come home. I wont have any obstacles. Whether I have to have a walker or crutches for a while, I will need the space to use these items to get me around. I wont pull a wheelchair out unless there is a bunch of walking that day. Like the zoo, or the other day Chris wheeled me around for my xray. It was on the bottom floor and my doctor appointment is on another floor so there would be a lot of walking.
All I know is I am ready to know what they are going to do, how it will effect me, and when I will be able to be 100 miles and runnin again. Oh because you better believe that I will.
Love to all,
Renee B.
Friday, June 25, 2010
Deja Vu
I went to my appointment on Wed of last week. I had to go to the xray first so by the time I went to the see the doctor then she would have seen what was wrong with me. There is a massive fracture in my left femur now and they were so afraid of it snapping that they wanted to admit me through the emergency room at that moment. Mostly for the pain it was causing me not because they were going to operate on me that minute.
I am still going to have surgery very quickly on this one. I am not totally sure what they are going to do at this point but I am scared. The surgery was the worst pain I have ever had in my life. This time I have a team of pain management doctors that will be there for me and I am comforted by that.
I was told to be there Monday morning at 5am. I am happy I did not spend the weekend there I know they wanted to install the pain pump right then and there though. Its time to take care of this no matter what.
Renee
I am still going to have surgery very quickly on this one. I am not totally sure what they are going to do at this point but I am scared. The surgery was the worst pain I have ever had in my life. This time I have a team of pain management doctors that will be there for me and I am comforted by that.
I was told to be there Monday morning at 5am. I am happy I did not spend the weekend there I know they wanted to install the pain pump right then and there though. Its time to take care of this no matter what.
Renee
Friday, June 18, 2010
All In A Day Of Pain
I am still waiting to find out what is causing my pain. I am wondering if it is something new or just pain from existing conditions that I am dealing with. I have dealt with pain during this whole thing but I haven't had it break me down and have me in the bed all day curled up. This time I have had a few days like that. The pills are starting to make me sick every time I take them so I am never really fully covered by the pain medicine that I am supposed to be to be taking. I end up getting sick before it ever kicks in. I know that its a battle that I am in fighting everyday for my life but its getting where I cant go a single day without having this pain stop me in my tracks and take me out of the world of normal everyday and puts me into the world of taking 3-4 steps at a time while running to a seat so I can have relief for my leg. I go to the doctor on Wed. to have an x-ray to see what is going on. I will go take it before my appt and I will find out what is wrong this time. I am tired of crying I know that much....but my strength remains!
Tuesday, June 15, 2010
IN YOUR FACE CANCER
I would like to say in your face cancer. Today I turned 33 and I was never supposed to turn 30 according to the first doctor I talked to after I was diagnosed. SO IN YOUR FACE CANCER!
Renee B.
Renee B.
Monday, June 14, 2010
HOLD YOUR HEAD UP HIGH
I have a message to my fellow women out there. First of all I want you to know you are beautiful. You deserve every bit of love you give out. I know just like me, we all do our best and that is all that we know to do.
One thing that is hard for us at times is to ask for help. We do everything for everyone but never ourselves. We take care of every person, we do deeds for others all the time but never see that we need to take care of ourselves. Women sacrifice way too much and for way to long. It time that we start thinking about ourselves again. In a good way, too.
It seems that no one notices the mom that is overworked, or the woman that has gone without so her kids can have. Why is that? I think that we are so used to seeing that type of thing that we treat it like its nothing. Its not fair for us to have to get used to. Its the truth. Most of us do it for so long we don't even realize it anymore.
I am trying to speak for moms, wives, sisters, aunts, grandmothers, and any other women that doesn't put herself first at least one weekend a month, one day a week, or at least an hour a day. I want you to remember yourself and start a trend of teaching the little women of the family to take care of themselves as a part of the family not killing yourself taking care of your family. We do it because we saw our mothers and grandmothers doing it so we did it too. Its time to break the cycle. Then there will be no chance for later stages of cancer not being caught early. They will have taken the steps the care for themselves early enough to know themselves and everything they should be doing to take care of theirselves their whole lives.
Renee B.
One thing that is hard for us at times is to ask for help. We do everything for everyone but never ourselves. We take care of every person, we do deeds for others all the time but never see that we need to take care of ourselves. Women sacrifice way too much and for way to long. It time that we start thinking about ourselves again. In a good way, too.
It seems that no one notices the mom that is overworked, or the woman that has gone without so her kids can have. Why is that? I think that we are so used to seeing that type of thing that we treat it like its nothing. Its not fair for us to have to get used to. Its the truth. Most of us do it for so long we don't even realize it anymore.
I am trying to speak for moms, wives, sisters, aunts, grandmothers, and any other women that doesn't put herself first at least one weekend a month, one day a week, or at least an hour a day. I want you to remember yourself and start a trend of teaching the little women of the family to take care of themselves as a part of the family not killing yourself taking care of your family. We do it because we saw our mothers and grandmothers doing it so we did it too. Its time to break the cycle. Then there will be no chance for later stages of cancer not being caught early. They will have taken the steps the care for themselves early enough to know themselves and everything they should be doing to take care of theirselves their whole lives.
Renee B.
Tuesday, June 8, 2010
Support for Family
So much feels out of control when one is diagnosed with cancer. For me, it was that major worst case scenario. The worst diagnosis one could possibly get, I got. The bad news has just been coming steady every since. I know that I would hope to help others know what to do when their loved ones get diagnosed since I have lived through it for 3 years so far.
I know that what I had was a major sense of spinning out of control. The first thing I can remember is that I had to give up working. Unlike others I actually enjoyed working and earning a living. I worked doing something I loved. I remember the first person that suggested that I file for disability. I actually got mad. I screamed at them that I was NOT disabled. I associated that term with someone that is completely unable to do anything at all. I don't know how else I thought of it other than that I didn't think it applied to me. I then thought about the previous months that I had been working. The misery that I experienced just getting up and going to work was horrible. It was very hard for me to leave working. I loved my work. It was funny because of the amount of pillows and things like that I ended up bringing home at the end because I was trying to make myself comfortable.
I ended up getting approved faster than most have seen because of how detailed I made my disability report. Some of the people I have spoken with can not believe that I was approved so quickly because some have been waiting years. Although I did get approved quickly because of the nature of my claim, and the fact that it was expedited through. I did have to wait for the processing and the payments to start. So it was 6-8 months for that to happen after I got approved.
I cant tell you the adversity Chris and I went through during that time. That was probably the worst because we struggled more than we ever have, even when we were young. The family would hold garage sales and things like that but it only went so far. I have had some of my family come through for me as well. Whether it be Aunt Judy that is there for me in every way, or my mom and sister who come and take me to every appointment so I don't have to be alone, or Aunt Carol bringing me lunch once or twice, or others that would donate to me in other ways such as gift cards or prayers of some kind. Aunt Janet and Uncle Jorge, my grandma, and Aunt Mary Margaret have sent prayers of love and care my way and have been there for me. Even still, it is but a mere drop in the bucket to what I could be making if I was working. I know that. Chris and I have had to simplify life in many ways. To tell you the truth we have done it. When it comes down to it, we have had time thrown in our faces, we really just value being together. He handles stress like a steam engine because he has really been a great person and caregiver to me.
I think if you are faced with having to file for disability, the more detailed you can be the better. Remember that doctors are going to be reading what you write, and it has to make sense to them. Also helping getting things mailed off or faxed in will be a big deal. Your loved one will have enough stress just filling the thing out and going through major treatments or medicines or whatever, so helping them getting things off in the mail or whatever it is, that would be great for them as well.
Even though mine was an office job, the tumor I had caused major discomfort because of the placement on my spine. It fooled my chiropractor for months while he was treating me for sciatica, all the while I had Stage 4 Cancer. It was St 4 because by the time they caught it, it had spread already to my spine. S1 and S2 is where it started spreading to at first. No one can prepare a person for something like that. I also had a lump that you could feel in my left breast. When I was examined I was told that I was too young to have breast cancer and there was no real sense of urgency from them. I was only 29 years old.
A since of normalcy I would have given up anything for. On top of that I lost my brand new mustang GT for which I saved and saved up for. We finally put our money into the car we wanted and when prescriptions alone are thousands a month, I was unable to keep my brand new car. So again it was another thing for me that felt it was ripped from me. After that I just lost it. I didn't eat for 8 months straight all the while having terrible pain shooting down my legs and down my back. Nerve pain and the first radiation made me so sick in the beginning too. I couldn't cook, or clean. Taking care of my family was just another thing I couldn't do. It made me crazy because being a mother and having a family is what I have prided my life on and all the sudden I could not do any of it. On top of that all the people I loved the most seemed started fading from my life more and more. I didn't do anything wrong to have this diagnosis on me. I didn't know why the people I loved stopped coming around.
I know it could not have been easy for anyone around me. People were in such a shock that I got more and more disbelief than I did empathy or compassion. I know that on top of everything that I was prescribed the wrong medication in the beginning. I had severe withdrawing that made me miserable. It was every 8 hours that I would have cold sweats and shakes. It was a miserable thing to experience.
The only thing I can tell someone who has a close family member who is experiencing chaos like this is to provide as much of normal life as you can for them. Help them with their medicines and refills. Help them not have to worry about dinners or cleaning. Help the kids with their homework. Help getting to church. Normal everyday things. Reminding that person that they are a person!! It is most important. It is so important for you to make them feel like they are a fighter and they are not going anywhere. Make sure that they know you are there for them, even if it is just to hang out and do nothing. It makes a difference. We need to be able to talk things out. So much goes on in the medical world that it is difficult to keep up with all the choices one may have in their treatment plan. It may help for you to help them with research and information. Make sure that you do not throw it in their face. Let them look at it at their own pace and their own time. I know that I didn't want all this information clouding my head on "what if's"....
The last thing I can think to say is that you may offer help and be refused several times. Just know if the person tells you they don't need help, they definitely do. Sometimes its hard...and I can tell you first hand that I needed my loved ones so bad and I felt alone. I did not ask for help, I didn't think I needed to. I felt that my info was already pretty much out there for everyone to know about and I felt that if people couldn't figure that out then I could not help them. It should have been obvious.
You could not believe the horrors I have faced and the strength of my family. I don't know how we have pushed through for as long as we have. We only continue to grow closer and get stronger daily. We have also seen the caring that strangers can give. It brings a certain hope and love and knowledge that you are loved and prayed for by most people that don't know you and have never met you. They have only heard about you. I have been praised with such a strength and bravery by others who root for me from afar and care for me through someone else.
All I can do I go on being me. I try to take what I learn everyday and live. Just live!
I know that what I had was a major sense of spinning out of control. The first thing I can remember is that I had to give up working. Unlike others I actually enjoyed working and earning a living. I worked doing something I loved. I remember the first person that suggested that I file for disability. I actually got mad. I screamed at them that I was NOT disabled. I associated that term with someone that is completely unable to do anything at all. I don't know how else I thought of it other than that I didn't think it applied to me. I then thought about the previous months that I had been working. The misery that I experienced just getting up and going to work was horrible. It was very hard for me to leave working. I loved my work. It was funny because of the amount of pillows and things like that I ended up bringing home at the end because I was trying to make myself comfortable.
I ended up getting approved faster than most have seen because of how detailed I made my disability report. Some of the people I have spoken with can not believe that I was approved so quickly because some have been waiting years. Although I did get approved quickly because of the nature of my claim, and the fact that it was expedited through. I did have to wait for the processing and the payments to start. So it was 6-8 months for that to happen after I got approved.
I cant tell you the adversity Chris and I went through during that time. That was probably the worst because we struggled more than we ever have, even when we were young. The family would hold garage sales and things like that but it only went so far. I have had some of my family come through for me as well. Whether it be Aunt Judy that is there for me in every way, or my mom and sister who come and take me to every appointment so I don't have to be alone, or Aunt Carol bringing me lunch once or twice, or others that would donate to me in other ways such as gift cards or prayers of some kind. Aunt Janet and Uncle Jorge, my grandma, and Aunt Mary Margaret have sent prayers of love and care my way and have been there for me. Even still, it is but a mere drop in the bucket to what I could be making if I was working. I know that. Chris and I have had to simplify life in many ways. To tell you the truth we have done it. When it comes down to it, we have had time thrown in our faces, we really just value being together. He handles stress like a steam engine because he has really been a great person and caregiver to me.
I think if you are faced with having to file for disability, the more detailed you can be the better. Remember that doctors are going to be reading what you write, and it has to make sense to them. Also helping getting things mailed off or faxed in will be a big deal. Your loved one will have enough stress just filling the thing out and going through major treatments or medicines or whatever, so helping them getting things off in the mail or whatever it is, that would be great for them as well.
Even though mine was an office job, the tumor I had caused major discomfort because of the placement on my spine. It fooled my chiropractor for months while he was treating me for sciatica, all the while I had Stage 4 Cancer. It was St 4 because by the time they caught it, it had spread already to my spine. S1 and S2 is where it started spreading to at first. No one can prepare a person for something like that. I also had a lump that you could feel in my left breast. When I was examined I was told that I was too young to have breast cancer and there was no real sense of urgency from them. I was only 29 years old.
A since of normalcy I would have given up anything for. On top of that I lost my brand new mustang GT for which I saved and saved up for. We finally put our money into the car we wanted and when prescriptions alone are thousands a month, I was unable to keep my brand new car. So again it was another thing for me that felt it was ripped from me. After that I just lost it. I didn't eat for 8 months straight all the while having terrible pain shooting down my legs and down my back. Nerve pain and the first radiation made me so sick in the beginning too. I couldn't cook, or clean. Taking care of my family was just another thing I couldn't do. It made me crazy because being a mother and having a family is what I have prided my life on and all the sudden I could not do any of it. On top of that all the people I loved the most seemed started fading from my life more and more. I didn't do anything wrong to have this diagnosis on me. I didn't know why the people I loved stopped coming around.
I know it could not have been easy for anyone around me. People were in such a shock that I got more and more disbelief than I did empathy or compassion. I know that on top of everything that I was prescribed the wrong medication in the beginning. I had severe withdrawing that made me miserable. It was every 8 hours that I would have cold sweats and shakes. It was a miserable thing to experience.
The only thing I can tell someone who has a close family member who is experiencing chaos like this is to provide as much of normal life as you can for them. Help them with their medicines and refills. Help them not have to worry about dinners or cleaning. Help the kids with their homework. Help getting to church. Normal everyday things. Reminding that person that they are a person!! It is most important. It is so important for you to make them feel like they are a fighter and they are not going anywhere. Make sure that they know you are there for them, even if it is just to hang out and do nothing. It makes a difference. We need to be able to talk things out. So much goes on in the medical world that it is difficult to keep up with all the choices one may have in their treatment plan. It may help for you to help them with research and information. Make sure that you do not throw it in their face. Let them look at it at their own pace and their own time. I know that I didn't want all this information clouding my head on "what if's"....
The last thing I can think to say is that you may offer help and be refused several times. Just know if the person tells you they don't need help, they definitely do. Sometimes its hard...and I can tell you first hand that I needed my loved ones so bad and I felt alone. I did not ask for help, I didn't think I needed to. I felt that my info was already pretty much out there for everyone to know about and I felt that if people couldn't figure that out then I could not help them. It should have been obvious.
You could not believe the horrors I have faced and the strength of my family. I don't know how we have pushed through for as long as we have. We only continue to grow closer and get stronger daily. We have also seen the caring that strangers can give. It brings a certain hope and love and knowledge that you are loved and prayed for by most people that don't know you and have never met you. They have only heard about you. I have been praised with such a strength and bravery by others who root for me from afar and care for me through someone else.
All I can do I go on being me. I try to take what I learn everyday and live. Just live!
Sunday, June 6, 2010
Gardening
Its been so hot! I have already had a preminition that this summer is going to be so very hot. I know that it is going to be. I have been gardening as well. I picked flowers that attract butterflies so I could have them flying around the yard. I also picked flowers that can last in the hotness. I know bees come around too but I have seen more butterflies than bees for sure.
I absolutely love the quiet time gardening can bring. Its pleasant. I have made sure that I have flowers all around my whole porch, around my trees, and along the side of the yard. I also discovered wild blueberries and raspberries growing in the backyard and along the fence in the front. It is so cool.
I absolutely love the quiet time gardening can bring. Its pleasant. I have made sure that I have flowers all around my whole porch, around my trees, and along the side of the yard. I also discovered wild blueberries and raspberries growing in the backyard and along the fence in the front. It is so cool.
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